Healthcare Narratives and Self-Care Stories: Developing a User-Driven Taxonomy for Adults with Cystic Fibrosis

View Sample PDF

Author(s): Daz Greenop (Liverpool John Moores University, UK), Sheila Glenn (Liverpool John Moores University, UK), Martin Walshaw (Liverpool Heart and Chest Hospital NHS Trust, UK)and Martin Ledson (Liverpool Heart and Chest Hospital NHS Trust, UK)
Copyright: 2011
Pages: 19
Source title: User-Driven Healthcare and Narrative Medicine: Utilizing Collaborative Social Networks and Technologies
Source Author(s)/Editor(s): Rakesh Biswas (People’s College of Medical Sciences, India)and Carmel Mary Martin (Northern Ontario School of Medicine, Canada)
DOI: 10.4018/978-1-60960-097-6.ch025

Keywords: Health Information Systems / Medical Information Science Reference / Medicine & Healthcare

Purchase

View Healthcare Narratives and Self-Care Stories: Developing a User-Driven Taxonomy for Adults with Cystic Fibrosis on the publisher's website for pricing and purchasing information.

Abstract

The aim of this chapter is to explore how a group of adults with cystic fibrosis (N=40) manage and account for self-care. By focussing on the development of character and plot, narrative analysis will illustrate how distinct patient identities may be constructed and performed as participants defend and justify their preferred self-care practices. These stories do not, however, always fit with the prevailing master narratives on which healthcare is often premised. Drawing on exemplars of 5 distinct types of storytelling an alternative user-driven taxonomy will be suggested which not only recognizes a range of self-care practices but also affirms their legitimacy beyond the horizons of mainstream biomedicine1.

The IRMA Community

Research IRM

Healthcare Narratives and Self-Care Stories: Developing a User-Driven Taxonomy for Adults with Cystic Fibrosis

Purchase

Abstract

Related Content

IRMA Sponsors