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Dimensions of the Patient Journey: Charting and Sharing the Patient Journey with Long Term User-Driven Support Systems
Abstract
The ways a person’s illnesses and afflictions are socially constructed and culturally conceived amongst relatives and friends as biographically contextualized in the narratives of a known life-journey are contrasted with modern conceptions of “Patient Journey” in the digitizing of medical care in hospitals and in computerized GP Consultations. In this chapter most relevant dimensions of a personal life-journey support system – across health, handicaps and illness - are outlined. The chapter demonstrates a new road to facilitate private logging of phenomena, a coherent and sedimenting self-narrative not only in text, picture and sound, but also through user-network-developed pictographic fonts. Inclusion of biotelemetric data and virtual body imaging as part of such support systems are considered. And questions are raised concerning the future of thus skilled chronic patients’ interfacing most trusted helpers, fellow-sufferers and wider shared social platforms of Patient Journey Records.
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