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Developing Community Ontologies in User Driven Healthcare

Developing Community Ontologies in User Driven Healthcare
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Author(s): Jane Fitzpatrick (University of the West of England, UK)and Willie Ako (University of Bristol, UK)
Copyright: 2011
Pages: 18
Source title: User-Driven Healthcare and Narrative Medicine: Utilizing Collaborative Social Networks and Technologies
Source Author(s)/Editor(s): Rakesh Biswas (People’s College of Medical Sciences, India)and Carmel Mary Martin (Northern Ontario School of Medicine, Canada)
DOI: 10.4018/978-1-60960-097-6.ch022

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Abstract

In developing equitable health systems, the World Health Organisation (2005) advocates strengthening the repository of social science research to inform policy decisions affecting health care. The players include the patient, family and community members and health care professionals. This requires a genuine engagement with community perspective on health issues. This chapter examines how health care professionals can engage in understanding user perspectives in order to develop effective health care policies and programs. This case study explores how involving an indigenous community enabled them to develop an effective health promotion and malaria prevention initiative in a remote rural community in PNG It draws on participant narratives to explore user perspectives and understandings of the health impact of a focused health promotion and malaria prevention initiative. It illustrates that poverty dominates their health experiences. The chapter illustrates how the development of a collaborative empowerment approach to research can have a significant impact on the strategies members of indigenous communities can develop in order to optimise their health experiences. It argues that in order to develop effective approaches to health care policy and design health needs to be appreciated in the context of lived experiences of those affected.

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