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Considering Informal Caregivers' Needs in Palliative Care and Bereavement: Making the Case for Family-Centered Care
Abstract
This chapter focuses on the support that treatment teams can provide to informal caregivers of people with cancer, from the time a diagnosis is made through grief counseling after death. Written through the lens of one informal caregiver's experience of caring for a spouse with cancer for 4 years before, during, and after the COVID-19 pandemic, the chapter describes current practices in the fields of palliative care and grief counseling for supporting informal caregivers in the disease process. The authors identify gaps in support for informal caregivers experiencing the disease's emotional, physical, social, and financial impacts. Using a family-centered care model, they recommend support for sustaining informal caregivers as they navigate this experience. They offer a vision for future improvements to this aspect of cancer care.
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