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Information Resources Management Association
Advancing the Concepts & Practices of Information Resources Management in Modern Organizations

Biobanking: Justice, Social Consensus, and the Marginalized

Biobanking: Justice, Social Consensus, and the Marginalized
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Author(s): Robert J. Barnet (Georgetown University, USA)
Copyright: 2010
Pages: 17
Source title: Healthcare and the Effect of Technology: Developments, Challenges and Advancements
Source Author(s)/Editor(s): Stéfane M. Kabene (Ecole des Hautes Etudes en Santé Publique, France)
DOI: 10.4018/978-1-61520-733-6.ch013


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It is important to recognize that the four “p”s - power, position, prestige and profit - too frequently drive science, business, academia, and the professions. This chapter is concerned with the importance of appropriate consent, the just distribution of the material benefits of scientific research, and the possible exploitation of research subjects. Informed consent and social consensus may not adequately address the related ethical issues involved in biobanking and other related research. Past experiences internationally, especially among the marginalized, are reviewed. The chapter explores whether benefits that accrue to those involved in research, and even the larger community, can rely on the concept of social consensus. Is there sufficient attention to transparency and adequate consideration of present and future harms and benefits to research subjects, their descendants and the broader community? Are conflicts of interest, real and potential, adequately acknowledged and addressed?

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