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Outreach for Unmet Needs in Cancer Care
Abstract
Despite significant medical advancements leading to personalized cancer treatments, breakthroughs are underutilized due to fragmentation within medical systems and the unmet needs of patients, especially those in rural areas. The founders of Cancer Help Desk (CHD), a non-profit organization, recognized the need for a virtual navigation model to expand patient access to personalized oncology care, regardless of their location within the U.S. CHD created a survey to understand how patients and caregivers perceive their cancer care and validate the need for the CHD virtual navigation model, utilizing oncology nurses, PhD-level molecular scientists, and experts in cancer diagnostics to deliver patient-centered care. The survey was administered by students from Bentley University, who obtained IRB approval. Over 1,000 support group representatives in 50 states received the survey by email, resulting in 139 responses. Respondents expressed unmet needs regarding psycho-emotional challenges, health system issues, communication barriers, and finding credible resources to make informed decisions. The responses validate the urgent need for virtual navigation services to support biomarker testing, clinical trial access, and financial resources for people dealing with cancer. More sustainable navigation models that address disparities and access to quality cancer care should be supported in the future.
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