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Involving Patients and the Public in E-Health Research

Involving Patients and the Public in E-Health Research
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Author(s): John Powell (Warwick Medical School, University of Warwick, UK) and Natalie Armstrong (Social Science Group, Department of Health Sciences, University of Leicester, UK)
Copyright: 2009
Pages: 12
Source title: Patient-Centered E-Health
Source Author(s)/Editor(s): E. Vance Wilson (Arizona State University, USA)
DOI: 10.4018/978-1-60566-016-5.ch009

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Abstract

This chapter deals with the principles and practice of patient and public involvement in e-health research, and discusses some of the issues raised. In the first part of this chapter, we discuss the problems of defining an “e-health consumer,” and discuss why, how and when to involve consumers in e-health research. We also set out principles to guide effective consumer involvement, and the benefits that this can bring in the e-health arena. In the second part of this chapter, we describe how consumers were successfully involved, through a variety of methods, in the development and evaluation of an Internet-based intervention to aid diabetes self-management. Patient and public involvement in research is not the same as undertaking research on patients or the public. It is about understanding, incorporating and benefiting from the relevant consumer perspective, at various levels, throughout the stages of a project.

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