Genetic Privacy: A European Design or Default?

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Author(s): Elsa Supiot (University Paris I Panthéon – Sorbonne, France)and Margo Bernelin (University Paris Ouest – Nanterre la Défense, France & University of Kent, UK)
Copyright: 2019
Pages: 18
Source title: Cyber Law, Privacy, and Security: Concepts, Methodologies, Tools, and Applications
Source Author(s)/Editor(s): Information Resources Management Association (USA)
DOI: 10.4018/978-1-5225-8897-9.ch034

Keywords: Business & Management / Cyber Ethics / Information Science Reference / IT Security and Ethics

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Abstract

This chapter analyzes the European Union framing of the protection of genetic privacy in the context of the European Commission's 2012 proposal to amend the 95/46/EC Data Protection Directive. This market-driven proposal, fitting a wider European movement with regard to health-related legal framework, takes into account the challenges to privacy protection brought by rapid technological development. Although the proposal is an attempt to clarify the 1995 Data Protection Directive, including the question of genetic data, it also creates some controversial grey areas, especially concerning the extensive regulatory role to be played by the European Commission. With regard to genetic privacy, this chapter takes the opportunity to develop on this paradox, and gives an analysis of the European design on the matter.

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Genetic Privacy: A European Design or Default?

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