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Ecosystems in Precision Medicine: The Need for Good Governance
Abstract
Emerging technology requires participating members to intensely collaborate in fundamentally novel ways. This participation includes established and start-up firms, health professionals, standards bodies, regulatory agencies, and of course, patients. But how to design, implement, and manage emerging technology that cuts across shifting zones? With firm and global boundaries increasingly blurred, uneven regulatory treatment, and evolving standards, how can ecosystem partners collaborate to mitigate the risks to consumers as their data becomes ever more precise and identifiable? This chapter explores the relationships and decisions that ecosystem partners must collaboratively take together in the context of precision medicine and the challenges of working effectively – and ethically - with consumers.
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