The IRMA Community
Newsletters
Research IRM
Click a keyword to search titles using our InfoSci-OnDemand powered search:
|
Clinical Data Linkages in Spinal Cord Injuries (SCI) in Australia: What Are the Concerns?
|
|
Author(s): Jane Moon (University of Melbourne, Australia), Mary P. Galea (University of Melbourne, Australia)and Megan Bohensky (Royal Melbourne Hospital, Australia)
Copyright: 2015
Pages: 14
Source title:
Big Data Analytics in Bioinformatics and Healthcare
Source Author(s)/Editor(s): Baoying Wang (Waynesburg University, USA), Ruowang Li (Pennsylvania State University, USA)and William Perrizo (North Dakota State University, USA)
DOI: 10.4018/978-1-4666-6611-5.ch017
Purchase
|
Abstract
Clinical data linkage amongst patients with Spinal Cord Injury (SCI) is a challenge, as the Australian Health System is fragmented and there is lack of coordination between multiple data custodians at the state and federal levels, private and public hospitals, and acute and allied health sectors. This is particularly problematic in chronic conditions such as SCI, where multiple data custodians collect data on patients over long periods of time. The author presents findings based on interviews with a range of data custodians for SCI categorized as clinical, statutory, and financial data custodians. It is found that data are kept in different silos, which are not coordinated, hence duplication exists and patient information that exists on many different databases is inconsistently updated. This chapter describes the importance of Clinical Data Linkage for healthcare in predicting disease trajectories for SCI and discusses how administrative and clinical data are collected and stored and some of the challenges in linking these datasets.
Related Content
|
Alessandra Lima da Silva, Diego Mariano, Mariana Parise, Angie L. A. Puelles, Tatiane Senna Bialves, Luana Luiza Bastos, Lucas Santos, Rafael Pereira Lemos.
© 2025.
22 pages.
|
|
Seyyed Mohammad Amin Mousavi Sagharchi, Mohsen Sheykhhasan, Atousa Ghorbani, Elina Afrazeh, Naresh Poondla, Naser Kalhor, Hamid Tanzadehpanah, Hanie Mahaki, Hamed Manoochehri.
© 2025.
46 pages.
|
|
Eduarda Guimarães Sousa, Lucas Gabriel Rodrigues Gomes, Fernanda Diniz Prates, Talita Pereira Gomes, Gabriel Camargos Gomes, Janaíne Aparecida de Paula, Ana Lua de Oliveira Vinhal, Bernardo Buhr Alves Mendonça, Mariana Letícia Costa Pedrosa, Luiza Pereira Reis, Aline Ferreira Maciel de Oliveira, Marcus Vinicius Canário Viana, Arun Kumar Jaiswal, Siomar de Castro Soares, Vasco Ariston de Carvalho Azevedo.
© 2025.
38 pages.
|
|
Diego Mariano, Lucas Moraes dos Santos, Raquel Cardoso de Melo-Minardi.
© 2025.
30 pages.
|
|
Alessandra G. Cioletti, Frederico C. Carvalho, Lucas M. Dos Santos, Raquel C. M. Minardi.
© 2025.
32 pages.
|
|
Leandro Morais de Oliveira, Luana Luiza Bastos, Vivian Morais Paixão, Leticia Aparecida Gontijo, Tatiane Senna Bialves, Diego Mariano, Raquel Cardoso de Melo Minardi.
© 2025.
40 pages.
|
|
Angie Atoche Puelles, Luana Luiza Bastos, Vivian Morais Paixão, Sheila Cruz Araujo, Raquel Cardoso de Melo Minardi.
© 2025.
28 pages.
|
|
|